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gloshammer 12:13 Sat Jun 1
Non hodgkin's lymphoma
Morning all

I was diagnosed with stage 3/4 non hodgkin's lymphoma yesterday. I already have a chronic pain condition along with absentia of common sense.

The oncologist says he wants to start chemo straight away but it may not work because of all the other meds I have to take (26 tablets per day and buprenorphine patch).

My question is, has anyone on here had NHL and gone through the chemo treatment, and what can I expect?

Although I own a healthcare company, we don't deal with anything like this and just getting a leaflet from the consultant doesn't instill confidence in me.

Please feel free to fuck me off at your own convenience

Replies - Newest Posts First (Show In Chronological Order)

yngwies Cat 7:08 Mon Jun 3
Re: Non hodgkin's lymphoma
Sorry to hear mate, hope you beat the bastard. I used to work for Anthony Nolan and have seen how stem cell donations can work. Wish you all the best.

jimbo2. 5:42 Mon Jun 3
Re: Non hodgkin's lymphoma
Best wishes mate & stay positive & strong

jimbo2. 5:42 Mon Jun 3
Re: Non hodgkin's lymphoma
If you can find a stem cell match, you can be completely cured. However it will take a year of avoiding all infections to rebuild your immune system.

Zammo 2:41 Sun Jun 2
Re: Non hodgkin's lymphoma
Beat the cunt!

Thoughts are with you pal!

Sarge 9:35 Sat Jun 1
Re: Non hodgkin's lymphoma
Nothing but best wishes and thoughts to the pair of you fellas

HCee 9:20 Sat Jun 1
Re: Non hodgkin's lymphoma
Ask your specialist about some very new stem cell treatment for this disease
Wishing you all the very best

Gaffa 8:22 Sat Jun 1
Re: Non hodgkin's lymphoma
Sorry to hear your news - all the very best with your treatment.

Westham67 7:52 Sat Jun 1
Re: Non hodgkin's lymphoma
All the best Glos and Wham

bill green 7:23 Sat Jun 1
Re: Non hodgkin's lymphoma
Best Wishes Glos and Wham Bamm

GBHammer63 6:42 Sat Jun 1
Re: Non hodgkin's lymphoma
Know someone who was diagnosed with same at the same stage, 20 years on he’s still ok, keep positive, very best wishes.

paulon 3:15 Sat Jun 1
Re: Non hodgkin's lymphoma
all the best fella

OccupyGreenStreet 3:08 Sat Jun 1
Re: Non hodgkin's lymphoma
All best wishes for a quick recovery Glos mate.

Crassus 2:35 Sat Jun 1
Re: Non hodgkin's lymphoma
cholo 1:41 Sat Jun 1
Best wishes Glos

arsene york-hunt 2:33 Sat Jun 1
Re: Non hodgkin's lymphoma
I had a lump in my neck for which i was diagnosed NHL after a biopsy. Had it two and a half years and am on watch and wait. The lump has shrunk in the last six months and has almost disappeared. I go for six monthly check ups. My prognosis is quite good for my age and I'll probably die of something else before the lymphoma gets me.

Far Cough 2:04 Sat Jun 1
Re: Non hodgkin's lymphoma
All the best with it

cholo 1:41 Sat Jun 1
Re: Non hodgkin's lymphoma
I too have no idea but also want to pass on my best wishes, for what it's worth.

Takashi Miike 1:32 Sat Jun 1
Re: Non hodgkin's lymphoma
best wishes on getting better as soon as possible

Eastside surge 1:31 Sat Jun 1
Re: Non hodgkin's lymphoma
Cant help you with that one I'm afraid but wish you all the best with your treatment mate

gooders 1:13 Sat Jun 1
Re: Non hodgkin's lymphoma
Had the Hodgkin's variety 15 years ago now. Two stem cell transplants (second one from an Anthony Nolan stem donor) eventually got rid of it. Cured my athletes foot too which was a bonus.
Good luck with the treatment mate. The science has moved on a lot since then.

Britannia Pub 1:11 Sat Jun 1
Re: Non hodgkin's lymphoma
Not had it personally but have watched someone very close go through it.

It took a while to get the diagnosis during which time a lot of weight was lost. Oncologist reckoned would not last too long without treatment but concerned about the heart failing when the treatment started. I’m only saying this to indicate how ill the person was.

Chemotherapy started, no sickness (anti sickness drug), loss of hair, tiredness for a day or so after each chemo session. Recovery was slow but not as slow as you might think. Had to have an additional two rounds of chemo to wipe out the last of the cancer which was a bit of a kick in the bollocks but it worked. It took a little while to build the strength back up but one done many more years (over 10) were had living a full and active life.

Chemo does fuck your immune system up whilst you’re having treatment so keep away from people with any colds, flu, viruses, etc. You also have to try to avoid too much sun (no sunbathing).

I would say that a positive outlook helps. Once they thought it COULD be cured the outlook changed and, I believe, that was part of the reason for surviving.

Good luck with the battle and I sincerely hope you end up with a similar result.

Alan 1:11 Sat Jun 1
Re: Non hodgkin's lymphoma
A mate had it years back. He's still with us, totally NHL-free.

Best of luck, hope it goes OK.

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